Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice
Kai J, Ulph F, Cullinan T, Qureshi N
Record ID 32006001312
English
Authors' recommendations:
Study found that communication of newborn carrier results varies considerably across England, and parents' needs for timely and appropriate information may not be met consistently or adequately
Details
Project Status:
Completed
URL for project:
http://www.hta.ac.uk/1510
Year Published:
2009
English language abstract:
An English language summary is available
Publication Type:
Not Assigned
Country:
England, United Kingdom
MeSH Terms
- Adolescent
- Adult
- Communication
- England
- Female
- Focus Groups
- Genetic Testing
- Infant, Newborn
- Interviews as Topic
- Male
- Middle Aged
- Neonatal Screening
- Young Adult
- Anemia, Sickle Cell
- Cystic Fibrosis
Contact
Organisation Name:
NIHR Health Technology Assessment programme
Contact Address:
NIHR Journals Library, National Institute for Health and Care Research, Evaluation, Trials and Studies Coordinating Centre, Alpha House, University of Southampton Science Park, Southampton SO16 7NS, UK
Contact Name:
journals.library@nihr.ac.uk
Contact Email:
journals.library@nihr.ac.uk
Copyright:
2009 Queen's Printer and Controller of HMSO
This is a bibliographic record of a published health technology assessment from a member of INAHTA or other HTA producer. No evaluation of the quality of this assessment has been made for the HTA database.