[Support services for informal caregivers who assist community-dwelling seniors with significant loss of autonomy]
Alarie M, Lapierre N, Samson F
Record ID 32018014905
French
Original Title:
Services de soutien pour les personnes proches aidantes qui accompagnent une personne aînée en grande perte d’autonomie vivant à domicile
Authors' objectives:
In recent years, stakeholders in the field of caregiving in Quebec have worked to increase
recognition, guidance, and support for IC. Published in 2021, the Plan d’action
gouvernemental pour les personnes proches aidantes - Reconnaître pour mieux soutenir
proposes a set of measures to implement the guiding principles of the Politique nationale
pour les personnes proches aidantes, with the aim of promoting a more coordinated,
concerted, and tailored response to the needs of IC throughout their caregiving journey.
As part of this action plan, the ministère de la Santé et des Services sociaux (MSSS) has
mandated the Institut national d’excellence en santé et en services sociaux (INESSS) to
identify services and describe ways to provide these services to better address the needs
of IC who support community-dwelling seniors with significant loss of autonomy.
Authors' results and conclusions:
RESULTS (#1 REALITIES OF INFORMAL CAREGIVERS): IC assisting community-dwelling seniors with significant loss of autonomy are generally
adult children caring for a parent or people who support their spouses. Therefore,
depending on the context, some may have to take on responsibilities for both their
parents and their children, in addition to other social roles, while some may be elderly
themselves with their own health issues. Given that seniors with significant loss of
autonomy often have degenerative and progressive conditions, the role of the IC who
support them tends to intensify over time. (#2 SERVICES FOR INFORMAL CAREGIVERS): The compiled data revealed that there is a variety of services than can address the needs
of IC who assist community-dwelling seniors with significant loss of autonomy. These
include navigation support, information and training services, psychosocial support,
physical health support, and respite services. While such services are already available
in Quebec, areas of improvements in the way they are delivered were identified in an
effort to better address IC’s needs. (#3 CROSS-CUTTING SERVICE MODALITIES): Cross-cutting service modalities that could better address the need of IC have been
identified. A preventive approach, particularly through regular needs assessments and
tailored interventions, could help prevent burnout and other negative consequences of
the caregiving role. Furthermore, as IC do not form a homogeneous group, CONCLUSION: The support provided by IC to seniors with significant loss of autonomy allows them to
remain in their own homes if they wish. The often chronic and degenerative conditions of
seniors receiving assistance mean that the support provided by IC evolves over time and
may intensify. This report describes the consequences of the IC role, the support needs
of IC, as well as the services and modalities that could best address those needs.
Authors' methods:
This report answers the following questions:
• What are the needs of IC who support community-dwelling seniors with significant
loss of autonomy?
• What services address the needs of IC who support community-dwelling seniors
with significant loss of autonomy, and how could these services be best provided?
Details
Project Status:
Completed
Year Published:
2025
URL for published report:
https://www.inesss.qc.ca/fileadmin/doc/INESSS/Rapports/ServicesSociaux/PPA_M34_EC_INESSS.pdf
English language abstract:
An English language summary is available
Publication Type:
Other
Country:
Canada
Province:
Quebec
MeSH Terms
- Aged
- Aged, 80 and over
- Caregivers
- Aging in Place
- Caregiver Burden
- Social Support
Contact
Organisation Name:
Institut national d'excellence en sante et en services sociaux
Contact Address:
L'Institut national d'excellence en sante et en services sociaux (INESSS) , 2021, avenue Union, bureau 10.083, Montreal, Quebec, Canada, H3A 2S9;Tel: 1+514-873-2563, Fax: 1+514-873-1369
Contact Name:
demande@inesss.qc.ca
Contact Email:
demande@inesss.qc.ca
Copyright:
L'Institut national d'excellence en sante et en services sociaux (INESSS)
This is a bibliographic record of a published health technology assessment from a member of INAHTA or other HTA producer. No evaluation of the quality of this assessment has been made for the HTA database.