Review of national rare disease strategies in selected countries
Power V, Larkin L, Norris M, O'Neill M, O'Shea M, Reidy E, Ryan M, Spillane D, Spillane S, Swanton D
Record ID 32018012008
English
Authors' objectives:
To support the development of a new national rare disease strategy for Ireland, the Department of Health requested HIQA to undertake a review of national rare disease strategies in selected countries. This review describes what these countries identified as issues of importance in their national rare disease strategies, the actions undertaken, and how they supported strategy implementation. The review will inform the development of a new national rare disease strategy for Ireland, through supporting the work of the National Rare Disease Steering Group.
Details
Project Status:
Completed
URL for project:
https://www.hiqa.ie/sites/default/files/2024-02/Review-of%20national-rare-disease-strategies-in-selected-countries.pdf
URL for protocol:
https://www.hiqa.ie/sites/default/files/2024-02/Protocol-for-review-of-national-rare-disease-strategies-in-selected-countries.pdf
Year Published:
2024
URL for published report:
https://www.hiqa.ie/reports-and-publications/health-technology-assessment/review-national-rare-disease-strategies
English language abstract:
An English language summary is available
Publication Type:
Other
Country:
Ireland
MeSH Terms
- Rare Diseases
- Health Policy
- State Medicine
- Drug Costs
- Orphan Drug Production
Keywords
- Rare diseases
Contact
Organisation Name:
Health Information and Quality Authority (HIQA)
Contact Address:
Health Information and Quality Authority, George's Court, George's Lane,Smithfield, Dublin 7. PH : + 353 (01) 814 7464
Contact Name:
info@hiqa.ie
Contact Email:
info@hiqa.ie
This is a bibliographic record of a published health technology assessment from a member of INAHTA or other HTA producer. No evaluation of the quality of this assessment has been made for the HTA database.