Original Title: Offre de service en centre de jour pour les usagers en soins palliatifs et les proches aidants

Authors' objectives: The purpose of this abridged assessment of technologies and methods of intervention is to answer the question: “What palliative care day centre service offer promotes clients’ (users and their families) well being and quality of life?”. This question gives rise to two assessment questions: 1. How effective are the care and services provided in PCDCs in promoting well being and quality of life? (effectiveness dimension) 2. What care and services are available in PCDCs in Quebec and elsewhere? (social and organizational dimensions)

Authors' results and conclusions: On the effects of PCDCs (effectiveness dimension) Attendance at a PCDC resulted in an improvement in at least one category of the variables measured in relation to well being among guests and caregivers: › Improved social interaction, quality of life and overall health among guests and caregivers who attend a PCDC. › Attendance at a PCDC could lead to an improvement in overall psychological well being and respite among guests and caregivers. On the description of PCDCs (social and organizational dimensions) The information available in the literature and the portrait of PCDCs in Quebec shows that the service offer in PCDCs is heterogeneous. Nevertheless, the following observations can be made: › Despite a number of commonalities, it is difficult to draw a single portrait of the services offered in PCDCs. › The services offered in PCDCs focus on individual needs and are part of a holistic and individualized approach that respects the needs and wishes of guests. › The services available in PCDCs are offered according to a hybrid model of care that combines health care and psychosocial services. › PCDCs offer a variety of services that are complementary to what is available in other palliative care services and which would not otherwise be provided. › The daily programming of activities in PCDCs is flexible and adapted to: • Take into account the guest’s general condition, energy level, events during the day (e.g., death of another guest) and the desired pace of health care. • Leave free time to allow for informal support between guests. • Adapt services that require reorganization of the pace of work of professionals. • Provide transportation for certain guests who would not otherwise be able to participate in activities at the PCDC.

Authors' recommendations: On the effects of PCDCs (effectiveness dimension) Attendance at a PCDC resulted in an improvement in at least one category of the variables measured in relation to well being among guests and caregivers: › Improved social interaction, quality of life and overall health among guests and caregivers who attend a PCDC. › Attendance at a PCDC could lead to an improvement in overall psychological well being and respite among guests and caregivers. On the description of PCDCs (social and organizational dimensions) The information available in the literature and the portrait of PCDCs in Quebec shows that the service offer in PCDCs is heterogeneous. Nevertheless, the following observations can be made: › Despite a number of commonalities, it is difficult to draw a single portrait of the services offered in PCDCs. › The services offered in PCDCs focus on individual needs and are part of a holistic and individualized approach that respects the needs and wishes of guests. › The services available in PCDCs are offered according to a hybrid model of care that combines health care and psychosocial services. › PCDCs offer a variety of services that are complementary to what is available in other palliative care services and which would not otherwise be provided. › The daily programming of activities in PCDCs is flexible and adapted to: • Take into account the guest’s general condition, energy level, events during the day (e.g., death of another guest) and the desired pace of health care. • Leave free time to allow for informal support between guests. • Adapt services that require reorganization of the pace of work of professionals. • Provide transportation for certain guests who would not otherwise be able to participate in activities at the PCDC.

Authors' methods: Two sources of data were used: (1) scientific literature (bibliographic databases: Embase, CINALH [EBSCO] [OVID], PsycINFO [OVID] and Social Care Online) and grey literature, published between 2014 and 2021; (2) contextual data that provide a portrait of the four PCDCs operating in Quebec at the time of the assessment

Project Status: Completed

URL for project: https://www.ciusss-capitalenationale.gouv.qc.ca/sites/d8/files/docs/Aproposdenous/Sommaire-Executif-SoinsPalliatifs_Anglais_VF.pdf

Year Published: 2022

URL for published report: https://www.ciusss-capitalenationale.gouv.qc.ca/sites/d8/files/docs/Aproposdenous/Publications/ETMI-ABREGEE-OFFRE-SERVICE-USAGERS-SOINS-PROCHES-AIDANTS.pdf

Requestor: Health professionals, paliative care providers, researchers

English language abstract: There is no English language summary available

Publication Type: Other

Country: Canada

Province: Quebec

Organisation Name: Centre intégré universitaire de santé et de services sociaux de la Capitale-Nationale

Contact Address: 525, boulevard Wilfrid-Hamel, bureau A-122

Contact Name: Sylvie St-Jacques

Contact Email: uetmisss.deau.ciussscn@ssss.gouv.qc.ca