Repatriation of paediatric haematopoietic stem cell transplant services to Ireland: a Health Technology Assessment

Health Information and Quality Authority
Record ID 32018004367
English
Authors' methods: The Terms of Reference of the HTA were agreed between HIQA and the National Clinical Lead in Child Health Public Health in the Health Service Executive (HSE). An Expert Advisory Group was convened comprising representation from relevant stakeholders. These included the HSE, the Department of Health, Children’s Health Ireland, patient representatives, and clinicians, nurses and medical social workers with specialist expertise. A protocol for the work to be undertaken was reviewed by the HIQA Expert Advisory Group, and published on the HIQA website (link). The epidemiology of these conditions in Ireland and the associated burden of disease was described. A high level description of HSCT and the outcomes associated with its use for these indications was provided. The current standard of care and treatment pathway for these patients, and the proposed pathway if HSCT treatment for all paediatric conditions were to be repatriated to Ireland, were described. The governance, organisational and legal implications of HSCT service expansion, including the impact on the resilience of the service, were assessed. The budget impact of providing HSCT in Ireland was provided across multiple perspectives. The ethical implications that the provision of HSCT in Ireland may have for patients, their families, the general public and the healthcare system in Ireland were reviewed. The draft report was reviewed by the Expert Advisory Group. A final draft report was submitted to the Board of HIQA for approval. Following its approval, the completed assessment was submitted to the Minister for Health and the HSE as advice.
Details
Project Status: Completed
URL for project: https://www.hiqa.ie/reports-and-publications/health-technology-assessment/hta-repatriation-paediatric-haematopoietic
URL for protocol: https://www.hiqa.ie/sites/default/files/2022-06/HSCT-Repatriation-Protocol.pdf
Year Published: 2023
URL for published report: https://www.hiqa.ie/sites/default/files/2023-02/HTA%20of%20HSCT_Feb23.pdf
Requestor: Health Service Executive (HSE)
English language abstract: An English language summary is available
Publication Type: Full HTA
Country: Ireland
MeSH Terms
  • Hematopoietic Stem Cell Transplantation
  • Child
  • Delivery of Health Care
  • Fertility Preservation
Keywords
  • haematopoietic stem cell transplant
  • HSCT
  • bone marrow transplantation
Contact
Organisation Name: Health Information and Quality Authority (HIQA)
Contact Address: Health Information and Quality Authority, George's Court, George's Lane,Smithfield, Dublin 7. PH : + 353 (01) 814 7464
Contact Name: info@hiqa.ie
Contact Email: info@hiqa.ie
This is a bibliographic record of a published health technology assessment from a member of INAHTA or other HTA producer. No evaluation of the quality of this assessment has been made for the HTA database.