Authors' objectives: This study's overall objective was to draw up a patient information booklet about sarcoidosis. To achieve this general goal, the following specific goals were set, namely: to analyse the quality of sarcoidosis information leaflets available to patients both nationally and internationally; to identify health-care information needs; to systematically review the evidence available and to draw up evidence-based educational material.

Authors' recommendations: Different factors, such as the expansion of the patient's role in decision-making and the complexity of clinical management of sarcoidosis, call for the implementation of strategies that will allow for the active participation of the various agents involved in the different stages of the health-care process, and will favour self-care. In this regard, active provision and integration of patient information materials in the health-care process could be of great help when it comes to improving clinical practice in sarcoidosis. This information material seeks to be a useful resource, not only for patients and their relatives but also for the health professionals involved in their clinical management, by providing quality information that will serve to foster communication and decision-making.

Project Status: Completed

Year Published: 2015

URL for published report: https://catalogobibliosaude.sergas.es/ASSCC711S_Linked_Documents/avalia-t201408-InformeSarcoidosis-DEF.pdf

English language abstract: An English language summary is available

Publication Type: Not Assigned

Country: Spain

Organisation Name: Scientific Advice Unit, avalia-t; The Galician Health Knowledge Agency (ACIS)

Contact Address: Conselleria de Sanidade, Xunta de Galicia, San Lazaro s/n 15781 Santiago de Compostela, Spain. Tel: 34 981 541831; Fax: 34 981 542854;

Contact Name: avalia_t.acis@sergas.es

Contact Email: avalia_t.acis@sergas.es

Copyright: Galician Agency for Health Technology Assessment (AVALIA-T)