Transitions at the end of life for older adults - patient, carer and professional perspectives: a mixed-methods study
Hanratty B, Lowson E, Grande G, Payne S, Addington-Hall J, Valtorta N, Seymour J.
Record ID 32014001302
Authors' objectives: The aim of this study was to understand the experiences, influences and consequences of transitions between settings for older adults at the end of life. Three conditions were the focus of study, chosen to represent differing disease trajectories.
Authors' recomendations: Development of a shared understanding of professional and carer roles in end-of-life transitions may be one of the most effective ways of improving patients' experiences. Patients and carers manage many aspects of end-of-life care for themselves. Identifying ways to extend their skills and strengthen their voices, particularly in hospital settings, would be welcomed and may reduce unnecessary end-of-life transitions. Why the experiences of carers appear to have changed little, despite the implementation of a range of relevant policies, is an important question that has not been answered. Recommendations for future research include the relationship between policy interventions and the experiences of end-of-life carers; identification of ways to harmonise understanding of the carers' role and strengthen their voice, particularly in hospital settings; identification of ways to reduce the influence of interprofessional tensions in end-of-life care; and development of interventions to enhance patients' experiences across transitions.
Project Status: Completed
Year Published: 2014
URL for published report: http://www.journalslibrary.nihr.ac.uk/hsdr/hsdr02170/#/abstract
English language abstract: An English language summary is available
Publication Type: Not Assigned
- Terminal Care
Organisation Name: NIHR Health Services and Delivery Research programme
Contact Address: NIHR Journals Library, National Institute for Health Research, Evaluation, Trials and Studies Coordinating Centre, Alpha House, University of Southampton Science Park, Southampton SO16 7NS, UK
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