Options for developing a web-based forum on patient registries

Gliklich RE, Campion DM, Khurana L, Leavy MB, Karl J
Record ID 32014000993
English
Authors' objectives: The objectives of this project are to determine the potential value of a Web-based collaborative forum, identify stakeholders' needs for such a forum, and propose possible strategies to create a forum. A key component of this project is engagement with stakeholders, including Federal partners, funding agencies, industry sponsors, researchers, health care providers, payers, and patients, to ensure that their views are considered and incorporated. The goal of this paper is to provide actionable information to the Agency for Healthcare Research and Quality (AHRQ) for developing a Web-based collaborative forum, should it be determined that such a forum is both feasible and valuable.
Authors' recommendations: The background research and the input from stakeholders suggest that a Web-based CoP is a feasible, practical way to provide current information on patient registry best practices and methods to a diverse set of stakeholders.
Details
Project Status: Completed
Year Published: 2014
English language abstract: An English language summary is available
Publication Type: Not Assigned
Country: United States
MeSH Terms
  • Humans
  • Internet
  • Registries
Contact
Organisation Name: Agency for Healthcare Research and Quality
Contact Address: Center for Outcomes and Evidence Technology Assessment Program, 540 Gaither Road, Rockville, MD 20850, USA. Tel: +1 301 427 1610; Fax: +1 301 427 1639;
Contact Name: martin.erlichman@ahrq.hhs.gov
Contact Email: martin.erlichman@ahrq.hhs.gov
Copyright: Agency for Healthcare Research and Quality (AHRQ)
This is a bibliographic record of a published health technology assessment from a member of INAHTA or other HTA producer. No evaluation of the quality of this assessment has been made for the HTA database.