Original Title: Análisis epidemiológico de la información recogida por los Registros Hospitalarios del Cáncer en la CAPV. Identificación de posibles mejoras en cuanto a la retroinformación y a la difusión de los resultados.

Authors' objectives: ● Determine the different ways hospital cancer registries use data within the context of the main developed countries. ● Identify the need for epidemiological information as seen by the professionals involved in the study, in the prevention, diagnosis and treatment of cancer in the Basque Community, that might be satisfied by making the information collected by hospital cancer registries available. ● Prepare and publicise a set of improvement proposals designed to optimise the feedback and the use of registries by clinics, researchers, administrators and planners.

Authors' results and conclusions: Hospital cancer registries should be useful for many kinds of users: professionals, clinics, health officials, the general public, etc. Achieving data of high quality in the form of specific indicators relates to their use and allows cases to be monitored more efficiently. In most registries, there is gap of between 2 and 5 years between the current date and the last complete year available. There is a considerable lack of knowledge about registries among agencies and clinical professionals. The use of data and its subsequent dissemination can be improved.

Authors' recommendations: 1. Promote an awareness of the existence of hospital cancer registries in the Basque Health Service (Osakidetza), among groups of professionals involved in the prevention, diagnosis, treatment and epidemiological study of cancer in our Community. 2. Connect the computer application that provides support for hospital cancer registries to hospital databases that represent potential sources of data. 3. The adoption by hospital cancer registry officers of appropriate measures to minimise the time that elapses between the diagnosis of a case of cancer and its registration. 4. Monitor registered cases in order to be able to calculate diagnosis and treatment times, etc. with precision, and enable the realisation of survival analyses. In other words, to achieve a veritable «clinical orientation» of the registries. 5. Foster the use of the available information and improve its availability (web site, e-mail, etc.) in order to make this accessible to all professionals who might be interested. 6. Foster an evaluation of the quality of hospital cancer registries.

Authors' methods: In order to respond to the first aim of the research, a thorough bibliographical review was made. A survey of other hospital registries in the Spanish State was also carried out. In order to achieve the second objective, 3 panels of experts were set up (clinical professionals, epidemiologistsadministrators and coders) in application of the «brainwriting» technique. Lastly, a survey was developed to determine the opinion of professionals in the Basque Health Service (Osakidetza) involved in the «cancer process».

Project Status: Completed

Year Published: 2008

URL for published report: https://www.euskadi.eus/contenidos/informacion/2008_osteba_publicacion/es_def/adjuntos/D_08_02_regishospi_canc.pdf

English language abstract: An English language summary is available

Publication Type: Not Assigned

Country: Spain

Organisation Name: Basque Office for Health Technology Assessment

Contact Address: C/ Donostia – San Sebastián, 1 (Edificio Lakua II, 4ª planta) 01010 Vitoria - Gasteiz

Contact Name: Lorea Galnares-Cordero

Contact Email: lgalnares@bioef.eus

Copyright: <p>Basque Office for Health Technology Assessment (OSTEBA)</p>